Greetings to all cuties. I have been gone for a long time. I have had major back surgery and cataract surgery within the last 2 years. My husband AFTD dementia is getting worse. I feel like I have a 2yr old and not a husband. He goes to Adult Day Care Center Monday - Friday and we have care givers coming into our home 3 hours every day Mon-Fri. We are now in the process of getting him into a memory care facility. I just renewed my membership. I have not done any sewing etc. for the past 2 years. A month ago I started a quilt for my granddaughter who is 3. I am finished with top and back I hope to start quilting this weekend. I know many of you don't know me I am Read180 AKA Cindy B

Hi Cindy, nice to see you. Wow you have been through a lot in 2 years. I can't imagine what it must feel like. Welcome back! I have one question... will you be putting your quilt together with hand or machine stitching.

I am sorry to hear of the decline of your husband. Nancy Reagan certainly was right when she called it "the long goodbye".

I will add you and your husband to our prayer list. I am glad that you have been able to do some sewing. It's the best therapy there is!

Welcome back to Cute and I do remember you! I do hope your back surgery will be successful. My husband and I both suffer from back ailments. He has 2 disc gone in his back from an injury and I have degenerative disc disease and osteoporosis.
I am sorry to hear your husband is worse. I remember when you first told us. I had to watch my mom change.....it's not easy and must be worse when its your mate. I'm glad to hear you have help for him and can free you up for some much needed 'me' time.
Enjoy getting back into your hobbies, post some photos of your quilt or anything else you make. Come to Cute for any uplifting we can give you, as we all have needed support, cyber hugs, comforting words, at one time or another. God bless you and your family-Toogie

My prayers are with you and your husband. We went through the same thing with my father 3 years ago and are now doing the same with my husband's mother. Dementia is a horrible disease and requires 24 hour care. My heart goes out to you. Welcome back!

Hi Cindy.
You are now in my prayers. I hope you have loving family and friends to help you get through this. Emotional support is very important.

Hugs
God bless
Doreen

Welcome back Cindy I am praying for you these are hard times

Glad to hear from you. We all have our problems but your problems sound really bad. I pray that all works out for you. Kay

Cindy, good to see you back. Sorry to hear about your problems. I can sympathize. Welcome back!/Lillian

So sorry to hear your husband has gotten worse. Praying that his move to the center comes soon and the transition is smooth. Keep your chin up and know we are all sending prayers your way!

1 comment

by read180 02 Jul 2017

Thank you

Hi Cindy. Think we share the same birthday - 9 Feb, Sorry to hear that the past two years have been tough. Good to see you back, hope you finish the granddaughters quilt. I am not used to the terms AFTD and memory care facility in the UK? Are you prepared to say more? Take care dear

2 comments

by read180 02 Jul 2017

You are right my birthday is Feb 9. I was born in 1952.
The disease my husband has is a form of dementia that begins at a very early age but usually not diagnosed until the later stage. The disease is called behavioral Frontal temporal dementia. He was only diagnosed in August of 2015. With all the questions and testing we went through we realize that this disease started about the year 2000.
He went from a very positive, jovial, make me laugh husband to a very angry and negative person I did not even recognize him as the love of my life. I just thought it was middle age. This is how the disease actually starts. In the last 2 years he has the inability of higher order of thinking. is memory of how to do things is very compromised. He may have only 12 to 24 months. His brain is dying and unable to connect. Thank you for your concern and prayers. Cindy

by arisann 05 Aug 2017

I have just been looking in Cute embroidery site a little today. Read this about you husband and I am so sorry he has this desaese. It is so very bad, my heart goes out to you now , praying for all of you. I have two friends that have the same desease. They have went down so fast and can not do for themself anymore. Please as always remember to take care of your own self, this is hard on you I know. God be with you!

You have not been forgotten. A lot of us remember you. I'm so sorry the last 2 years have been so difficult.. I hope your surgeries have both been successful. I know it had to be even more difficult with your hubby's condition. I'm glad you are in process to get him into a care facility. I know firsthand how difficult it is to care for someone 24/7. Now fire up your machines and stitch away. Be sure to show off your precious quilt in the Sewing section. We would love to see your work.

1 comment

by read180 02 Jul 2017

Thank you so much I am doing more sewing and quilting.

Welcome back, Cindy...so sorry to hear about your husband...glad you are back sewing and quilting again, too...

1 comment

by read180 02 Jul 2017

Thank you!

Welcome back. Being a caregiver for a loved one is a full time job. I was sole caregiver for my MIL after my husband passed. You have a lot of things to check out here. Make sure we see a picture of your quilt
Jo

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by read180 02 Jul 2017

Thanks Jo. I have seen a lot of new designs and projects.

Sorry to hear of your struggles for the last few years. GLAD TO SEE YOU BACK THOUGH. Prayers are coming for you and hubby. I know how difficult dementia can be, Enjoy your granddaughter,,

1 comment

by read180 02 Jul 2017

Thank you! I am trying to cherish every day and I just love the grand kids. 2 boys 7 & 8 and our little grand daughter 3.

How wonderful to see you here again. I am sorry that the last two years have not been kind to you. I hope you soon get back to sewing up a storm and remember the Cute family are always around. Hugs Sarah

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by read180 02 Jul 2017

Thank you Sarah. I am enjoying my sewing, embroidery, and quilting. Unfortunately I am not in my sewing room. That has become my husbands bedroom since it is next to the bathroom on the first floor. I am sewing in the dinning room but a small space so I am constantly trying to find things and putting things away when we have company.

Welcome home Cindy. I do remember you and am sad to read of your struggles but very glad you have come back.
There is a very old and very true saying that "Life is what happens while we are busy making other plans."
So try as we may, we cannot ever take our lives for granted but must make the most of what we have and grab what happiness we can, when ever we can.
I am so glad you have started sewing again as you need to keep your inner self happy too, so that you can cope with everything else life throws at you.
Sending you huge hugs and love, Meg

1 comment

by read180 02 Jul 2017

Thank you Meg. I agree with every thing you wrote. I have 2 very very close friends that will let me rant and rave cry when I need to and just listen. They also make me laugh. Coming back to Cute is also healing help. Hugs and love to you.

I remember you, welcome back. Blessings to you during a difficult time of your life.

Welcome back, Cindy. My heart just breaks for those dealing with memory loss of loved ones. But glad you have found some help. Friends are always here with an ear & prayers!

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by read180 02 Jul 2017

Thank you so much I truly have missed everyone and all the projects and designs.

Hi Cindy, my heart, thoughts and prayers go out to you. I know what you are going through as this happened with my Dad. Your dear husband is going to a place where he will get great care and you have done a marvellous job in looking after him yourself. I agree with Angie below watching Dementia patients deteriorate is heart wrenching. God bless you and I pray that you will get some sewing done in the not too distant future. Love and blessings Chris

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by read180 02 Jul 2017

Thank you Chris. This is the hardest thing I have ever done. He is only 62 and we had to retire him and take away his driving rights, and I am now responsible for everything. It is good to hear from everyone and see all the awesome projects and designs. Love Cindy

Nice to hear from you Cindy Yes you will have more time when your hubby is placed in a wonderful home ****My brother loves his (when he remembers ) Hugs Carolyn(Noah)

1 comment

by read180 30 Jun 2017

Thank you for the hugs.

That is a lot on your plate. I am so sorry. Watching the deterioration of a dementia patient is heart braking. Keeping you and your family in prayers.

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by read180 30 Jun 2017

Thank you! Prayers are always welcomed.

Welcome back, Cindy. It sounds like plans are under way for you to reclaim some time and peace and hopefully, fun stitching. Hopefully this will give you more quality time with him when you are with him. Caregiving is tough.

1 comment

by read180 30 Jun 2017

Thanks, care giving is very challenging. I think it is harder than raising our three kids. Who are now on their own with families.

Prayers for you and your husband. Happy to hear from you again. Hugs Lynn

1 comment

by read180 30 Jun 2017

Thanks for the hugs Lynn