I'm still around but with my husband's problems I hardly have time to do much. He's in hospice and I have a caretaker come each day which gives me time to go shopping or what ever else I need to do. I have a hospital bed in my living room so he can watch tv together. I've been swamped getting him out of the hospital and getting things set up here, let alone all the meds/doctors/ nurses that show up. It's exhausting as some of you already know.

Thanks everyone for all your helpful advice and support. We are in a routine now and I have a caretaker that does everything...dishes, laundry, etc. and she is a big help. I feel lucky to be able to have at home care for my husband as I am calming down now that we have a routine and I have help. Having my friends here is comforting to me.

1 comment

by pennifold 01 Aug 2022

This is so encouraging to read Penny. I've been praying for you and your hubby. Come on here anytime to have a chat, love Chris

Dear Penny, my prayers for you and your husband are sent to you. God will give you the strength to handle what you can. It is good that you do have a caregiver for your tummy. Take care of yourself, too....Keep in touch with the group.

Dear Penny, my heart aches for you. This is such a difficult time. Try to enjoy the small things you still have together and store the memories. And please look after yourself as well, believe me, you'll need it.

Prayers for your peace and comfort. Do take time for yourself.Cute will be here to cheer you on and up. The meds alone are so stressful. If you can, use the pill minder containers. Then once a week --when you are not very stressed--fill the pill minder. It can help.

Sending prayers. Hugs

Dear Penny, my heart aches for you and what you are going through. I'm so glad to read that you have got everything in place for your husband's comfort. It's such a hard time to go through and please be assured of my prayers and thoughts too. I agree with Karen, Betsey's words of wisdom speak so true.
Just make sure you do get to have 'me' time, as believe me you need it. I am praying that this special time you have together will be remembered with fondness and love. Love Chris

1 images:[1]

I'm so sorry that this is one of the most difficult times you will go through. But I am so thankful for the blessings you do have. What a special time for you both to be able to be together watching TV. Treasure these memories. Graceandham is a wise woman and has given you a lot of very good advice. Keep us in the loop when you can and know we are sending prayers and cyber hugs everyday.

I'm hopeful that now that you are set up at home with caretaker and hospital bed, equipment, etc. that things will get a bit less stressful for a while. It is a huge adjustment and I know can be overwhelming. You have a whole different life, now. Carve out some brief joys for yourself in your days of caring (including checking in on Cute), as you can. Measure out what you can do and should do and must do, and what is for the moment, unimportant. The yard care may become a low priority or keeping up every speck of dust. Lean on family, friends, neighbors, church friends to support your endeavours. Simplify what you can. I recommend setting up what bills you are willing to on "automatic pay" schedule, so that bill paying takes less time. Your pharmacist may be able to help you schedule your prescriptions so that you only do a pharmacy run once or twice a month instead of every few days. Simplify some of your cooking even if it means you eat frozen pot pies or Lean Cuisines a couple of times a week. (No cooking channel judges will be swinging by to judge your efforts.) Here's the biggest ask, and hardest to do. Try to enjoy what you have left of him and his time here. Share memories, photos, old movies, etc. Get all the goody out of a hard experience. Much love and prayer and respect for you! Betsey

1 comment

by pennifold 30 Jul 2022

This is so beautifully written Betsey. Love Chris

This isn't an easy time for you - probably one of the most difficult - but, you are doing a very good thing, by having him at home with you (both for your dear hubby and yourself)! Sounds like all the particulars of arranging doctors, nurses and his meds are starting to be in place - getting that all set up must feel like juggling! Please know we are here for you! You and your dear hubby are in my prayers and I am sending you good thoughts - I wish I could really give you a hug!! Laura

Life sometimes is very difficult and its obvious from your comments that your life is far from easy at the moment. It is good that you have your husband at home with you and that someone comes in daily to be with him so you can go out to shop etc. Take care and I will think positive thoughts for you both.