by hightechgrammy 03 Nov 2023

Hi Dear Cutie Sisters,

I just wanted to say Hello so you won't think I've fallen off the fhe ace of the Earth. I've just had a combination of health problems and family challenges. t takes a lot of my days to manage all the challenges.. not just the meds, appointments and PT, but all that time on the phone arranging things and working "with" the insurance companies. grrrr
Maybe you remember I started the Koolen DeVries syndrome Facebook group. We had 24 families to start and now it is up to 1,540 members! Those families are so busy raising their kids with special needs, it seems I'm the one who has the time to manage the site. It has become quite a mission, especially for the ones who are very ill, and for the other parents whose children have passed away from effects of the syndrome. So now I am feeling like I should have become a grief counselor.
I have been making Hug Quilts for the ones who are the sickest.
I do find some time to do some embroidery, which I still love.. I made this bag of places we have gone. One side is national attractions, the other side is more personal places. I don't know if I had shown to to anyone yet. I used Embrilliance to make some of the designs completely from an idea and a few others I combined designs.
You are all still very special to me. I do check in once in a while and try to comment on a few at least.
Hug and Love,
Jan. aka hightechgrammy

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Comments (12)

by 02kar Moderator 07 Nov 2023

Beautiful bags that are heirlooms of memories. I’m glad you started the FB support group. I remember the joys and the stresses you shared with us as well as the grief. Kudos and thanks for all you are doing to help others. Hopefully, you will find tome and energy to pop in now and then to update us on how you are doing.

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by hightechgrammy 30 Nov 2023

Thank you, Karen. I'm hoping you are doing well. You have certainly been through your share of challenges - LOL to say the least.I love our Cuties so much. It's amazing how people from around the world, who have never met in person, are truly friends. Hugs to you, Jan

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by cfidl 05 Nov 2023

How did you know I was thinking of you and wondering what you are up to. Good things along with getting older. Lol! Christie is coming again in December if you are up to doing a joanns shopping trip.

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by hightechgrammy 30 Nov 2023

Oh Christine, thanks for thinking of me! How exciting for Christie to be coming to Colorado. You guys will have lots of fun. Does she still make designs? How are YOU? And your family?

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by gerryvb 05 Nov 2023

wow, great job !! please take care, hugs )))

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by hightechgrammy 30 Nov 2023

Thank you, gerryvb

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by sebsews 05 Nov 2023

So glad to hear from you! Thank you for all you do for the site and making hug blankets for the ill. I will check it out. I think you are doing better than most of us with age related issues. Your bag is amazing and so are you!! Hugs, Suzanna

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by basketkase 04 Nov 2023

Great job, Jan.....love what you did here. So sorry you've had issues 😔, life sometimes hands us lots of surprises!

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by noah 04 Nov 2023

Love this 4 sure hugs xxx

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by hightechgrammy 30 Nov 2023

Thank you, Noah, It was fun to design.

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by dlonnahawkins 04 Nov 2023

Jan, it is so kind of you to manage the site as you do, and to help others that have gone through what you had to go through. Love the bag, and I don't think that I had seen it previously. Best of wishes for you, and hope things smooth out for you soon. Cyber Hugs.

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by hightechgrammy 30 Nov 2023

Thank you so much for the encouragement. It feels so good to do the things we believe God has asked us to do. Hugs back to you!

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by bemara 04 Nov 2023

Great work :-)

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by hightechgrammy 30 Nov 2023

Thanks so much!

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by dragonflyer 04 Nov 2023

Great job, Jan...a great way to remember the good times you had at each place.

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by hightechgrammy 30 Nov 2023

I didn't realize we had been so many places... so this was a good reminder. There are actually more! I only designed about half of the designs.

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by mrskiki 04 Nov 2023

You are so very clever-it's beautiful. Keeping you in my prayers. Hugs. Nan

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by hightechgrammy 30 Nov 2023

Thank you, Nan. Now I wish I had made some different structural and design changes, but truly, it makes me happy to use this bag. Now I'm thinking I may do something on thee places I have lived. Much fewer deesigns1

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by toogie 03 Nov 2023

I don’t think I saw it first go ‘round so it’s new to me. Very nice! I wish i could digitize the places I’ve been. You are smart and creative!