Life expectancy without medecines: 155 days 07:59: 53 Received support on 26/12/2008: 2,14% of require totaalbedrag Sandra, victim of shortcoming European legislation… Beginning 2008 strikes the need destiny and was determined that Sandra by an extremely rare, but deadly metabolism sickness were found. Poison piles up himself in its body on as a result of which its nerve warrants die. Professoren communicated: " … There is none remedy available… Sandra will be on the decline… to death. She is terminaal." Sandra parents did not understand it… A child where at the latest nothing seemed be wrong, was given up by the UZ! ….They to house were sent to spend their world the last year with her… collapsed. But the real nightmare had start then still… By means of the Internet find Sandra' s pa rather for the sickness medecine rapidly specific developed that in Europe was released exactly. The high technological medecine proves be unreal expensive and must two years be administered continuously. Total cost: 1.080.000€! In Denmark it proved to be already approved and gets patients it paid back even entirely by the government! By a shortcoming in the European legislation the Belgian sickness insurance RIZIV cannot compensate for the medecine… Sandra' s parents resist themselves sky and ground and address a cry of distress to the Belgian government. These want help to have been bound absolutely, but legally. They can declare only their condolence… Sandra must die….Unless its parents can collect the money himself…. They " vechten" year now almost 1. Feverish zoeken them day and night to a way to get the money collected. But everywhere where they will knock to get them the door on the nose… in interval must them impotently take care how their kind maidservant is on the decline rapidly and irreparably; knowing that is a medecine available there… their frustration, panic, pain is not the loss and describe the feeling of total impotence almost. Eventual seeing them that nobody will help them… nobody… Unless… The " gewone" custard minus gene; the man from the street. They only can save its now still on the fall band. Boze barrel says that us the custard minus gene chillily and stiffened to be and them no longer touch this. We cannot believe this. We have been persuaded of it that a lot of people want our and will help! Sandra can in the meantime no longer talk and already have paralysed partially. But is intellectual them entirely at and realises what her happens there. Since previous summer has been shrieking she every day, sometimes hours to a piece, until she falls exhausted in each other. It is her only manner request aid. Its parents become almost crazily of the constant oorverdovende screech! Without the medical care its situation further reverse go and stands wait its still a terrible anguish. Its life expectancy is valued to around by the end of May 2009. There rests her days therefore only 155 more to live. Only the treatment can call to a halt to its situation. Sandra' s dream was later a princess become. But that them already and remains she was also. We all together must try the princess save now. Kind people from can Flanders, you with a small contribution Sandra' s sympathise help to save! YOU that now read this: possibly YOU have also children… put you even in our place! Help us nevertheless kind save Sandra of death. Tone that you have a heart for children! That Sandra unnecessarily does not have die. We beg you, then nevertheless help her! This can you happen tomorrow also. Then we there also stand for you! We dare hope on massive support of the custard minus gene! You its hair some and last hope! Without you she is dead! Guard aub not. The treatment must start now. Differently she is within 6 months dead. We are YOU indefinitely grateful!!! The names of all generous donors, who we the " Golden Harten" to call, will be reflected permanent on this internet site. We love YOU here further each day on altitude the state of the art. Follow or we obtain the totaalbedrag and its save. Inform YOU concerning Sandra' s situation and examines the pictures of the first toediening. We wish and your family YOU in advance a glorious Kerstfeest and happy new year 2009! Inch with our for Sandra! Once again, 1000x thanks for your support! William and Olga, Sandra' s parents

THIS IS A LITTLE GIRL FROM BELGIUM WHO IS GOING TO DIE IN 5 MONTHS IF SHE DONT GETS THE RIGHT MEDICATION,

YOU CAN SEE MORE ABOUT THIS GIRL ON www.red-sandra.be ITS IN DUTCH BUT YOU CAN TRANSLATE EVERYTHING ON http://nl.babelfish.yahoo.com/tra... SO YOU CAN SEE WHAT IS GOING ON WITH THIS LITTLE GIRL,

EVERY HELP IS WELCOME FOR THESE PARENTS TO SAVE THEIR LITTLE PRINSESS

THIS IS HEARTBREAKING,

PLEASE READ TRANSLATE THE PAGES OF THE WEBSITE FROM THIS LITTLE GIRL TO SEE WHATS GOING ON WITH HER,

EVERY SUPPORT IS WELCOME FOR THESE PARENTS

THIS CRY FOR HELP FROM THE PARENTS OF SANDRA WAS THIS EVENING ON THE BELGIUM NEWS ON TV

THANK YOU ALL FOR READING