how do you manage the pain and go about your daily activities. Any information would be of great help. Thanks

Gayle, Your daughter has all my simpathy because I am also a Fibromyalgia sufferer and boy suffer it is. I sent you a Private Message. You can contact me via that. Love and hugs,
Annatjie

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by gayle950 27 Oct 2009

thank you

prayers for your family...I hope she will be able to get the help needed....deanna

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by gayle950 26 Oct 2009

thank you

I can relate to Fibromyalgia. I am 57 and have had this for years before they new what to call it. I also have restless legs. The meds I take really make a huge difference. I do hope that your daughter will seek good medical advice.
Cindy B

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by gayle950 26 Oct 2009

getting the right medical advice will make all the difference but some doctors are just too busy too care. lets hope she finds a good one. Hope you are feeling better and not suffering too much pain.

There are new drugs on the market now for R. A. If u don't have S.E. from them they help. Lyrica is usually the drug of choice for the Fibro. I have no one in my fmly with these now but had an aunt with the R.A. she pssed away 30 yrs. ago & they didn't have a lot for it. Back then, hot whirlpool bath everyday got her limbered up enough to work. She was spvr. over the lab at the hosp. they also gave her injections of gold. She would call them her gold shots. I don't believe they do that anymore. they would also have her drink a little wine everyday. They have come a long way with medical knowledge in this field & Fibromyalgia wasn't even known back then. I hope your daughter can get all the help she needs. A lot of the big hospitals have research going on with these & if she could get in one of those groups all her meds would be free. The only thing is you are a guinea pig but they do take good care of you. *

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by gayle950 24 Oct 2009

The long journey begins in finding the right meds. Thanks for your information.

You have PM

I am sorry to hear of your daughters illness. She is very young to have to live with rheumatiod arthritis and fibromyalgia. Hopefully they will give her meds that can help relieve her pain and let her lead a fairly normal life. I will keep her in my prayers.

1 comment

by gayle950 23 Oct 2009

thank you, it would be good to find a cure for all these diseases in the world

Gayle, will keep her in my prayers.

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by gayle950 23 Oct 2009

Thank you

Dear Gayle, I'm so sorry to hear about your daughter. Thoughts, Yoriko

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by gayle950 23 Oct 2009

Thank you

Sorry to hear about your daughter but I cannot ofr you any help. ZSorry for that.

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by gayle950 23 Oct 2009

Thank you

I have 2 daughters with Fibro. One of them, she is 40, does without pain meds put has to take an antidepressant. She has a 14 and a 11 year old girls. One of my youngest (36 and a twin) is on 2 kinds of meds. Apparently it is really important to get a good night sleep. Exercise seems to help. She has no children and manages fairly well. It took some time for her to find the right meds and dose. If you want I could find out what meds she is on. send me a pm if you want that info.

3 comments

by gayle950 23 Oct 2009

Thank you I will pm you because sometimes you have to ask doctors about some meds
She does like to take the baby for a walk but the doctors say not to walk because of the arthritis. They suggest swimming but very hard with a small child.

by marjialexa 23 Oct 2009

I'm no MD, but I'd sure get a second opinion on that walking! I know RA can damage joints, but walking (NOT jogging) with good shoes, and not until you're exhausted, will keep the joint fluids lubricating those joints. When you don't keep moving, you stiffen up like cardboard! Swimming would be good, too, if she could find a warm pool and take the little one swimming, too. Kids should learn to swim anyway. Even being in the pool would take weight off the joints. Good luck, this is a tough diagnosis. Hugs, Marji

by gayle950 24 Oct 2009

When she visits the specialist she will be able to work out what she can do. Thanks again.

please tell her if she is using any diet stuff, like cooldrink,yogurt or diet sugars she must stop. Feel so sorry for her more and more people are diagnosed with this. Will advise her to take good Omega 3. hope she will be fine

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by gayle950 23 Oct 2009

Thanks for that, she is a big fan of diet coke and has it every day. This may help her.

My DIL has Fibro. She's 30yrs old and has 3 kids, 6,4, and 2. She was diagnosed just before she got pregnant with the youngest. She has good days and bad. She's not taking any medication for it yet. She says fresh air and exercise actually help her to feel better. When she doesn't excercise it gets worse.

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by gayle950 23 Oct 2009

IO hope that she can manage with just exercise so she doesn't get hooked on painkillers.

I do. Well the Fibromyalgia, I take cymbalta and some other pills, can not remember the name.Pain is worse some days, but she will learn to leave like that, you get used to it, sometimes hurts so I have to cry...but I am doing so much better.Hope the Lord help her to feel better.Hugs.

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by gayle950 23 Oct 2009

Sorry to hear about your Fibromyalgia. I will tell her about the cymbalta. She will go to the specialist soon but you have got to have all the information before you go so you can ask questions