by lflanders 24 Apr 2010

thing but as far as I know it does not have a clinical name or the family just has not said. It is a condition where with minimal stressful exercise will cause his heart to feel like it is beating out of his chest, which his uncle says is very painful. Over time his heart will enlarge until it has no room left go and the lining of his heart will thicken increasingly over the years. They say it can be controlled some by diet and he can no longer play any of his games that he loves so much. Jayden had just gone to his T-ball teams 1st practice when they finally got the results and can no longer play ball. He a very typical little boy that loves all the things that all "boys" love to do. The dr.'s also had put a 2nd monitor on him and it failed to work correctly so they have ordered another one for him that should be in anyday now. I guess now that they have some idea as to what it is, they are wanting to be more thorough with anything that can show up on the monitor. His Uncle lives in Florida and has been asked to come in for test and they have sent for his medical records so they can check and see how much his heart disease has progressed over the period of time since his disease was discovered. Of course, we are all terrified but have hope that it can be controlled to some extent over the years. All of God's miracles are with him as well as the wonderful Specialist in the Atlanta area. Sadly, he did come home from his t-ball game in some pain and started complaining about his heartbeat hurting again. For now, his ball games are over until something new comes to light. It is something that he will NOT outgrow. It will only get worse with time unless they discover something in the future to help him. I again ask for prayers for this precious little 4 yr. old that is trying very hard to understand what his new "Rules" for everyday living are and why they have suddenly changed. Actually, for a spoiled rotten, lovable little boy, he is taking what he understands very well. He is asking alot of questions and Mom and Dad are trying to tell him everthing he needs to know at this point as to not terrify him. I am getting old and have been through alot and seen alot in my time, but, I find all of this hard to understand myself!!!!!! He is only 4 and is 150% all boy and it is only now beginning to show up. Seems if it is inherited there should have been some kind of signs of it to start with. Jayden does have a 2 yr old brother, Brayden, that is all boy also. We can only pray that it does not show up in him also. Brayden is the one that never even crawled and is only now learning to slow down and walk,(Sometimes). He went from scooting across the floor to getting up running and has not shown any signs of slowing down since his feet hit the floor! He gets into everything! You can not turn your back on him for a second! Thanks for just being here to listen and continual prayer would be appreciated. Hugs to all

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by gerryvb 25 Apr 2010

prayers for you and family and hugs especially for you!

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by shirlener88 24 Apr 2010

My prayers go with you and the family

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by ksgram1 24 Apr 2010

Jayden, as well as the rest of the family, shall continue to be in my prayers. It is so hard when it is a child who suffers. Remember,"With GOd all things ARE possible." Hugs.***

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by judybell 24 Apr 2010

I am so sorry about Jayden, and know how worried you all for him. One blessing is that by him being so young he won't give up on doing all the things he can with his condition. I will pray also that God will keep him safe and the doctors will be able to treat him in the very best way. Also pray for you and his family. In Christ, Judy

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lflanders by lflanders 24 Apr 2010

Thank you for you kind words and prayers. You are right about him not giving up. He is smart and a bit on the stubborn side and I know myself, if I had not been so stubborn with my near tragedy 6 years ago, I would be gone today. I am still fighting to keep my legs but... today I am winning. Better Dr.'s and alot better technology in the last 6 years have helped us all find the cause of my problems soooo..A new and better way to treat them. Lrft leg had been healed for several months and right leg is getting there! A slight infection stalled it for awhile. Of course, I would not be here today if it had not been the Lord's will! Jayden is not blood kin but you can bet he is just as stubborn as his step-great-granny! My son married his granny when he was 2. Hugs and blessings to you.

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by psssst 24 Apr 2010

Keep your faith everyday doctors are working on diseases and cures. I will pray for Hayden and your whole family. I wll ask God to please help doctors find a way to cure him. God Bless Jayden and all of you

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lflanders by lflanders 24 Apr 2010

Thanks so much for your prayers and yes our faith is what keeps all of functioning! It IS always so much harder to accept and to deal with when child is involved. Hugs to you!

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