Another cancer update: When I went in Wednesday for chemo they told me that I had missed an appointment for a shot a week and a half ago and until my blood regulates itself I cannot get chemo. I asked what I could do to help it along and they said nothing. I half to go back for chemo next Wednesday but if the blood hasn't regulated whatever this is I will be turned away again and it will stay that way till this regulates itself! So I get some time off chemo but don't know when I can get back on it. My new scan showed the tumors have not shrunk but also have not grown so all we can do is continue chemo and see if we can get the tumors to shrink. That won't happen till my blood regulates. It has nothing to do with the 2 bags of blood and 1 bag of platelets I got last week. So, just a waiting game. As long as they keep the bone pain in check so I am not in much pain I am OK with this but hope it doesn't take too long. My new port worked great with the scan and the blood draw to check before the chemo I should have gotten. So, there won't be any news for another week.

by leenova54 16 Mar 2012

Thank you, I am going to do just fine.

by leenova54 14 Mar 2012

Thanks Alice. I am doing all I can.

by leenova54 14 Mar 2012

Sounds good too me! I loved the windows open today, the cat loved bird watching and could hear them too!

by leenova54 13 Mar 2012

Yep, did more crying the last 2 days than the last few months! All for her and her family. Sending them some FSL angels so I have been stitching love into them.

by leenova54 13 Mar 2012

Thanks, there is so much on the internet I get lost! Seems everyone has a different source, for now, I love my doctor so I am going with what she recommends but checking out the other stuff on the side. Hugs, Debra

by leenova54 13 Mar 2012

Thank you, there are so many loving people on this site that I don't know what I would do without you all!

by leenova54 13 Mar 2012

Thank you, I am trying to be good. Next chemo is the 28th and will be something different since this one didn't make me better. It did hold me in check though, no change is better than for the worse!

by leenova54 13 Mar 2012

Thank you Lenamae, I have no control but to show up for my appts, thankfully I remembered this week, lol! I am doing better this morning. My friend, Phyllis has been off the vent for 12 hours and hoping to go home and have hospice care in a few days! I am thrilled!!!

by leenova54 05 Mar 2012

Thank you, I am doing pretty well, my Mom is having the hardest time of all, can't stop her from crying and she doesn't realize that it just makes it harder for me.

by leenova54 05 Mar 2012

Thank you Louise, I'll just keep fighting this but in the end, it is not my will but His that will decide.
Hugs, Debra

by leenova54 04 Mar 2012

Thank you, yes, I want to get back on a routine very soon so we can at least hold the cancer from growing. Prayers I am stable for it Wednesday!

by leenova54 03 Mar 2012

Thanks, I am looking at this like a little vacation away from the hospital :)
I'll get plenty more soon enough.

by leenova54 03 Mar 2012

Thank you so much! Thank God for letting someone invent the Fentanyl patch! I am keeping strong but I sure wish my parents wouldn't cry every time they look at me!

by susiesembroidery 14 Mar 2012

Dear Friend, I know that parents get very emotional over a child's pain. It is so difficult for me to know about your pain and I think how hard it is for them. It scares them and I am praying for all of you.******

by leenova54 02 Mar 2012

Thanks, don't know how I missed it except for I always have Wed-Fri appts and this one was on a Monday. Yes, no growth is good. hoping at least for remission.

by leenova54 02 Mar 2012

Thank you so much. I am trying to keep him from worrying so much too. Seems we hold hands a lot now. Passing our energy to each other I think.

by leenova54 02 Mar 2012

Thank you Sarah, we have to keep up on our angels since God got us all together!

by leenova54 02 Mar 2012

Thank you for caring, I know when we start getting to know each other we are anxious to know how they are doing. I won't know more for a week.

by leenova54 02 Mar 2012

Thank you so much. God has many angels and I think most of them are on this site!

by leenova54 02 Mar 2012

Thank you, it is frustrating. The sooner I get the chemo going the sooner I get another scan to see if we got anything that helped.

by leenova54 02 Mar 2012

I know when you are keeping track of someone you wait patiently to hear how things are and then worry when you haven't heard. Sometimes I am slow to post. My brother says I just want pity, lol. As for my Mom, she is great as usual if I can keep her from crying. Today I will see her and fix up some earrings she has that broke, she loves that I am handy.

by leenova54 02 Mar 2012

Thank you so much. That's all I need, besides my doc, chemo, hubby, sons, parents, etc., LOL!

by leenova54 02 Mar 2012

Thank you, some days it takes work to be positive, other days just a ray of sun through the window will do it.

by leenova54 02 Mar 2012

Awww, thanks, it's the group of people on here that help keep me going. You can feel the love.

by leenova54 02 Mar 2012

Thank you Yoriko, I think of you often and all you have been through also. I hope your son is doing well in school.

by manami 02 Mar 2012

Debra, thank you! My son is well and studying hard to go to public university in 2 years. I'm very proud of him, he has been through many challenges, finally he found peace and happiness in the place he lives now. You are in my prayers. Love, Yoriko

by leenova54 04 Mar 2012

So glad for him and I know it eases the pain in your heart to know he is doing well!

by leenova54 02 Mar 2012

Thank you, prayers keep me going and the love from everyone on this site helps keep me going, it really is true! I can come in here and type and if a tear gets by nobody sees!

by leenova54 02 Mar 2012

Thanks, just my goof up, I need to pay better attention. I also didn't get to find out if the new pain in my spine around L10 is a new lesion either. Oh well, just wait till next Wednesday I guess.

by leenova54 02 Mar 2012

That's the weird thing, they do call to remind me but didn't about the shot cause I had chemo on the Friday and then should have gone back on Monday so they didn't remind me on this one. It is frustrating but like you said, this way the port can heal more cause they put the needle into it right over where the incision is. If I was getting chemo today I wouldn't be able to go visit my parents this week so there is the up side to it, lol.

by leenova54 02 Mar 2012

Thank so much. No, they can not give the shot till a couple of days after a chemo treatment so I can't get the shot till after I get chemo, it is a vicious circle that my body has to fix.

by leenova54 01 Mar 2012

Thanks for caring. There are tumors in both hips, several ribs on both sides, one on each side of my skull and at least 3 on my spine. This is not fun.

by leenova54 01 Mar 2012

No, it's not easy but it is harder on my parents, they worry so much and now they are waiting for results of my Dad's 5 years colonoscopy, they found 2 polyps and we hope they are not cancer so he can have 3 years without colonoscopies. He's 75 but his brother and sister are 81 and 84!

by leenova54 01 Mar 2012

Thanks DeVon, we will get it going eventually. At least this will give my incision over the port more time to heal, it's doing nicely so far.

by leenova54 01 Mar 2012

Thanks, it was my fault, I should have checked the calendar better, I don't usually have anything on Mondays.