by hightechgrammy 11 Apr 2013

I hope this okay to post this in Personal as it has absolutely nothing to do with embroidery or sewing. Just love and faith and living a real life.

I was so proud of Ben. We have a friend who is just a little older than Ben: they both had infantile spasms. Nellie has Tuberous Sclerosis, and has continued to have seizures, while Ben doesn't have them anymore. While we were visiting with Nellie and her Mom last week, she had a couple of really hard seizures, which Ben saw and was concerned about. Then on Monday night he was gently crying in bed. When I went in and asked him what was wrong. He sobbed, "Nellie." I asked, "What about Nellie?" "Nellie..... Nellie... has has has has has has has lots of seiz seiz seiz seiz seiz .... seizures." There is this guy, with all of his own challenges, sobbing about his dear friend Nellie, and her challenges. I know lots of "typical" people who don't show that kind of true caring. We prayed for Nellie and that the seizures would go away. And just like we pray to put Ben's fears "in the trash" Ben asked God to put "Nellie's seizures in the trash." How sweet is that? Love you all, Jan

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by gerryb 31 Aug 2013

Ben is a blessing...We should all see the world thru his eyes. Praying for him and his friend...and for you too!!

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by jerrib 30 Aug 2013

I have tears running down my face after reading this. To me its obvious that Ben doesn't view himself with challenges and shows his concern for his dear friend. He truly is a very remarkable young man with parents who are there for him every step of the way. Bless you all and I pray that they are able to help Nellie with her seizures. Hugs Jerri

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by toogie 30 Aug 2013

Just read your heartwarming post. I agree with you here, there are people that don't have this loving feeling, and they are the ones with the 'problem'. Good for dear sweet Ben.Love to you and yours,Toogie

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by rgotter 18 Apr 2013

Love to read of such love and concern after all the horrible things on the news. I hope that the doctors can find a way to control Nellie's seizures.

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hightechgrammy by hightechgrammy 21 Apr 2013

Thank you :-)

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by drro 18 Apr 2013

Thanks for sharing your pictures Jan. My prayers are on their way for both Ben and Nellie, and you all as well! Hugs, ro

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hightechgrammy by hightechgrammy 21 Apr 2013

Thank you so much, Ro, we really need prayers - always :-)

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by manami 12 Apr 2013

What a sweetheart you Ben is. You have all the rights to be proud of him. Sending prayers for Ben, Nellie and family. Love and hugs, Yoriko

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hightechgrammy by hightechgrammy 21 Apr 2013

Yoriko, thank you for your prayers :-)

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by mary51 12 Apr 2013

Beautiful story!!!! God bless them

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hightechgrammy by hightechgrammy 21 Apr 2013

Thank you, Mary

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by jrob Moderator 11 Apr 2013

Tell Ben he gets to be Jesus with skin on for Nellie. If love and goodness would cure the seizures, her's should be gone quickly. What wonderful parents Ben has to raise a young man with such a tender heart.

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hightechgrammy by hightechgrammy 21 Apr 2013

It is such a sweet friendship. Thank you

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by caroldann 11 Apr 2013

Jan, when you told the story about Ben's condition a few years ago you brought tears to my eyes. Once again you have managed to do that. What a remarkable son you have. His love and concern for his friend should be an inspiration to us all. I know you and your husband are very proud of Ben but as parents you should also be very proud of yourselves. Hugs..Carol

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hightechgrammy by hightechgrammy 11 Apr 2013

That is so sweet. We are truly blessed.

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by noah 11 Apr 2013

Oh God please help these boys hugs

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hightechgrammy by hightechgrammy 11 Apr 2013

Thank you!

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by KCowden 11 Apr 2013

Touched my heart!!! God bless you, Ben and Nellie!!!

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hightechgrammy by hightechgrammy 11 Apr 2013

Thank YOu!

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by gerryvb 11 Apr 2013

many can find an example of good friendship here :)

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hightechgrammy by hightechgrammy 11 Apr 2013

They are best friends.

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by rescuer Moderator 11 Apr 2013

Dear Jan, These are the moments -- that make it all worth the effort. It seems Ben still has the pure love we should all be striving for. You are an excellent mom! Hug your wonderful child for me!
Hugs to you also. I wish I could afford the fuel to give the hugs in person. One day...

2 comments
hightechgrammy by hightechgrammy 11 Apr 2013

Someday we are going to have that hug! Shall we meet in Grand Junction?

rescuer by rescuer 11 Apr 2013

That would be awesome! I will have to see if we get a vacation this year -- downside of owning a business.... :(
Although, we do love going to National Parks -- so it could happen!

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by ssampsel 11 Apr 2013

what a beautiful friendship & lovely inspiration!

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by grandmamek 11 Apr 2013

Jan, What an inspiration your son is. Such a beautiful story. As you said he faces his own challenges and yet he is so caring of others. THank you for sharing this with us. Hugs, Mary

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hightechgrammy by hightechgrammy 11 Apr 2013

Thanks for your understanding, Mary!

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by michemb 11 Apr 2013

Tears in my eyes and swelling in my heart, such a kind and loving story,
thanks for sharing a beautiful part of humanity,
hugs
Michelle

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hightechgrammy by hightechgrammy 11 Apr 2013

These are my Joy of the Lord moments :-)

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by Ada 11 Apr 2013

wow thanks for sharing this true simple storry. God bless

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hightechgrammy by hightechgrammy 11 Apr 2013

I do feel blessed :-)

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by basketkase 11 Apr 2013

Thank you, Jan & Ben, for reminding us to take care of one another, a true example of a humanitarian!!

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hightechgrammy by hightechgrammy 11 Apr 2013

I learn from Ben every day! Thanks

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by rmj8939 11 Apr 2013

What a lovely person Bed is. God bless him and his friend.

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hightechgrammy by hightechgrammy 11 Apr 2013

Thank you!

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by pennifold 11 Apr 2013

Oh! how lovely Jan and isn't that what it's all about - caring for one another. Ben has a heart of Gold and it's so lovely to see him and his friend here together. Love and blessings Chris

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hightechgrammy by hightechgrammy 11 Apr 2013

Thanks, Chris! And a little child will lead them!

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by cfidl 11 Apr 2013

That is very sweet. Ben knows what is important. People. His compassion is true.

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hightechgrammy by hightechgrammy 11 Apr 2013

It is sooo pure. Thanks, Christine

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by asterixsew Moderator 11 Apr 2013

Jan thanks for posting this. What a lovely picture of the pair of them.

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hightechgrammy by hightechgrammy 11 Apr 2013

Thanks, I posted a more recent one of them. She just adores him too!

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by meganne 11 Apr 2013

That is so beautiful but only what one would expect from someone with such a pure heart as Ben. God bless his sweet soul.
My niece Natalie has epilepsy and suffers severe grand mal seizures, so, sadly, they are no strangers to this Cutie.

Please tell Ben I think he rocks!!!
Hugs and love to Nellie and Ben. Meg

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hightechgrammy by hightechgrammy 11 Apr 2013

Thanks, Meganne

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by airyfairy 11 Apr 2013

Dear Jan - Ben is such a very special boy and to care so much for Nellie is just wonderful. I think that 'Personal' is just the place for family business. I love hearing all about the Cuties and their families.
Lots of hugs to Ben and his very special mother. Sarah.

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hightechgrammy by hightechgrammy 11 Apr 2013

Nellie's mom is my mentor - SHE is incredible! Thanks, Sarah

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by crafter2243 Moderator 11 Apr 2013

Thanks for sharing his sweet story. It makes me want to come over and hug him.
P.S and you too.

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hightechgrammy by hightechgrammy 11 Apr 2013

I feel your hug from here! Thanks, and a hug back!

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