I should have explained that I now have permanent damage to the vestibular nerves in my ears. I went through a specialized Physical Therapy program the month before my husband retired from the US Air Force so I can walk like a normal human being most of the time. But any over stimulation of visual or auditory input (like spinning overhead fans or a bucket of silverware being dumped on more silverware in a restaurant will send me spinning. And yes, the pun is intended. I hate having to ask people to turn off their fans in private homes or public places. But oh how I loved your responses to how to bling up my hats. We are trying visors first which my husband ordered in pink. I do have one wide brimmed straw hat already. And I found it sad that I am in a club that includes so many of us. I guess we need to call ourselves the Dizzy Cuties. Better than the Ditzy Cuties. I have been assured that I may be dizzy, but I am not ditzy. I am very grateful that my husband patiently hands over his hat when I need it (if he has one, and he does most of the time). But I know he would prefer that I have my own hat available. Now to find hats that fit and block out enough vision, then onto the bling part. And yes Carolyn, I would like to include a purple hat in my wardrobe or at least have some purple on one.
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Karen my. daughter would know how to sympathize. She has Meniere's Disease and for yrs she had the same awful problem of dizziness and NV. They did everything known to man back then, that was 30 yrs ago. They finally had to go in to 1 ear and destroy the cochlear and like you she had to have therapy to where she could walk normally. She works a job everyday, but anything fast moving around her. even sewing, the fabric going through the machine makes her dizzy and sick. She just had her 52nd birthday and will always have to cope with this but she does. She cannot ride in any kind of vehicle except a car and then only if she is driving. She flew twice but the Drs. gave her something so she would sleep through the flights. She is a happy person and has a wonderful husband but never had any children I always wondered how she would handle it if she did but God knows what our limitations are./Lillian
145791I have a hat similar to the barnhat below. It helps me. I have been sensitive to noises, lights and temperature for a while. I went to the eye doc and they say dry eye. I complain of the tinnitus and all they have to help is a noise machine. Like I want more noise, The electrical stuff in the body, I call pain. Lol! I am not falling down however. Bless your heart and keep it going, we do adapt, as best we can.
173695If you are having trouble finding just the color scarf or material, try the headbands. There are some styles and widths, some with flowers some without. I have a small head and most sizes of hats are too big, using the headbands makes them just a little bit tighter on my head.
New idea: Get some material and use the new glow in the dark thread. What a fashion statement!
15626A long scarf on a large brimmed hat looks nice and easy to change for change of colour of outfit.
I wear large brim hats to protect my nose from the sun - had plastic surgery there for a benign skin cancer.
One hat I have is between a bright red and a bright orange. One lady at work calls me the beacon as she can always find me in the shops when we go out at lunch time. :-)
We will bring hats back into fashion for every day wear!! Yeah!
1941I can understand your problem and sympathize with you. I hope the wide brim hats work for you. I also have a permanent ear problem after a brain operation back in 2001. I can't stand the noise of fans, refrigerators, loud radios etc. Some days are worse than others. There are days when I just cannot go into a supermarket or some shops. Some shops have there music so loud that all I want to do is leave the store. I will not fly on a plane any more as I just cannot stand the noise at the airports. Even the noise of the Embroidery Machine in hard to cope with some days. I just have to make the most of my good days and take one day at a time. Hugs
52686Dear Karen, so sorry to read the damage is permanent. I hope you can locate some wide brimmed hats that will alleviate the problem. We have collapsible hats here in Australia that would be great. I'll see if I can locate some.
We have our Spring Racing Carnival here now in Australia and the Melbourne Cup is in November, so there will be lots and lots of hats appearing in our news and local races. I love wearing hats.
I hope Rob is doing well, keep your chin up. Love Chris
www.barmahhats.com.au
2 comments
by 02kar
03 Sep 2014
Great idea. They would work really well for traveling. I hope you post a picture of you in your lovely hat.
234505sorry about the permanent damage...but I hope to see pictures soon of your own blinged hats. Hugs, Gerry
1 comment
by 02kar
03 Sep 2014
I now have two hats to work on. I have some lace designs to try on one of them.
743324I know just how you feel as loud sudden noises or sharp ones cause me so much pain.........I can't be around when someone runs fans or kids screeching or garberators the list goes on but as Suzanne has said people want to see you & it is nothing for them to turn if off & trust me they will adjust to seeing you in hats & think that you are very stylish & making a wonderful fashion statement too! I used to fret over how tidy my kitchen was when someone was coming over to visit & have been told that they are coming to visit me not my kitchen I think the same applies here they want to see you & would be happy to turn off the fans. I want to see a bright RED hat! they are so much fun to wear once you get in the swing of things LOL ~hugs~
1 comment
by 02kar
03 Sep 2014
You are always so helpful. I continue to be your Number 1 cheer leader. You really are a model to all with neurological issues.
299559Just spent ages writing a reply for it to vanish into the ether. Apologies if my comments to your last post appeared to be flippant. I had forgotten that you had been through heath issues. I have put large floppy hats that fold up into ebay and loads turn up. So you could have a great collection of large floppy hats so when you go out one could go in your bag to be on hand if needed. Perhaps someone might even digitise a design for a large floppy hat, designed in small pieces and joined together. Would adapted glasses work. Anyway all the best with solving the problem
1 comment
by 02kar
03 Sep 2014
I didn't think they were flippant. I got to laugh with several of the comments and that is always healthy.
115775Glad you liked my suggestion of a purple hat and I can't wait to see a picture. I am sorry though to find out that the damage in your ear is permanent. Friends I am sure will understand your requests about turning of the fan or be amused with you sitting in their living room with a wide brimmed hat. I am glad you make the best from a not so perfect situation.
1 comment
by 02kar
03 Sep 2014
I won't feel any better if I complain, so I try to make the best of it. But I do hate to have folks have to accommodate me.
109774You don't have to feel bad to make yourself comfortable.I understand how you feel completely.... I will shut the fans in order to have you here visiting me.No problem here... BUT I can't wait to see your new bling hat!!! Fan free zone here!! Love you!! HUGS
1 comment
111388Bless your heart. I've made some monogrammed baseball caps. Don't know it they would have a brim wide enough to cover your problem, but I think they would. This one was from KMart and I just pinned it to the cut away. It actually stitched fine without a hat hoop.
This is one club I don't want to join, but I'm glad you have found some like-minded dizzy friends.
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