SUNDAY NIGHT- Still on vent, but reduced oxygen to 75%. Doctor didn't give results of heart ultrasound, although they know. Nurse said that was usually a good sign, that nothing was wrong/urgent or they would have heard by now. I guess they go by, 'no news is good news' but it is stressful 'not knowing'. Caleb sent family the text this morning and asked not to call to talk to him, as they were crying and too upset.
My heart breaks for my family. We went through this roller coaster 11 years ago, with Isabella and Avery. It brings back too many memories, for all of us.
My oldest daughter and I should leave Friday for our trip. I don't feel like going. I don't want to be here either, though. I need strength to face anything about Rylan..My husband says go. I could always fly home if I had to. He says if we don't go Marsha will lose what she paid, over $1,000 as she mainly was going to be with me...I am torn. I never said anything before, but since Avery coded and had to be heli-ported to the hospital, a few years ago, I have anxiety attacks, in highly stressful situations. I know that is why my husband wanted to distance me from this situation.
I also know, you Cuties are my friends and I can tell you all this. I admit I really need prayer too (does that seem selfish?) because I need strength for whatever God's plan is. Most of all, it took me a long time 11 years ago, to submit and pray God's will be done. After all, what if His will, was different than mine, as a grandmother? I blame myself for Isabella living/suffering twice as long as she should have. The doctors said the most a baby lived, without kidney function was 9 days. She lived 19 days! When I finally submitted to pray 'God's will be done on earth as it is in heaven', her life/suffering ended. If I wouldn't have taking so long to accept His will, I could have saved her so much suffering.
I do hope I have not upset anyone here or brought back memories you'd rather forget. If I have, I sincerely apologize.
Thank you for prayers already prayed and prayers you will continue to pray, for little Rylan and our family. In Christian love-Toogie

Monday Oct10th-Rylan still on vent at 35%-please continue prayer

Tuesday the 11baby Rylan off the ventilator and back on CPAP-

WED THE 12TH-Rylan looks good & is doing better today. He was given some of mom's milk yesterday so they are increasing the amount today. He is sucking his fingers and trying to get his fist, in his mouth.-lol-Dr will repeat the heart ultrasound today to see if the spot is still on the heart or it was nothing. Everyone's spirits are raised!

THURSDAY the 13th-Rylan is a week old today! It has been a traumatic and stressful week for him, poor baby, and all of us. He is now on the nasal cannula and improving daily. I am so thankful to my God! Mom got to hold him for the first time, photos above.

Toogie my prayers are with you all glad to hear he is doing better keep us updated

FRIDAY-the 14th-Today Rylan is breathing on his own. Daddy got to hold him. They have increased his intake of moms milk again. The heart ultrasound still shows a spot on his heart and we are waiting for the results of exactly what it is. Thank God, first of all, and all of you for answered prayer. Please continue to pray for him & parents. I appreciate all your words of support, although haven't answered each one individually, please know I read them all and I thank you. X&O's Toogie

Toogie praying he continues improving each day and the spot on his heart is nothing to worry about xxx

Hallelujah! What an awesome God I(we) pray to. I knew he would not let us down. Thank you so much Toogie, for the updates. There still may be difficult times ahead, but our prayers continue. I'm saying a special prayer for you that your pain of heart will be taken away. It may have been that Isabella couldn't let go because she knew how much she was loved. No, you are not being selfish in asking for prayer for yourself. We all need strength from our Heavenly Father. Even Jesus prayed for that strength. Sending much love to all. - Marjorie