Update: Thank you for all your prayers and words of encouragement. Caden is definitely feeling more confident about having seizures and have seen some positive results from his medication. He is still worried about what will happen when school restarts, but that does not appear to be happening until the fall. Thank you again.
We had an interesting Easter this year, as I am sure all of you had with social distancing and lockdowns. While we were eating dinner, Caden, the 12 year old who has all the emotional problems, PTSD, and ADHD asked "why is my arm jerking?' We didn't pay to much attention, because Well, itl's Caden. The next thing we know, is he is staring, his face turns beat red, his eyes roll to the back of his head and he stiffens out just like a board and one arm is slowly jerking. We got him to the floor and on his side. Had DH call 911. By the time medical personel got there, Caden was starting to come around. They took him to the hospital( only one person could go with him) because he had never had anything like this before. We thought maybe some of his meds needed to be changed as he had recently started on a couple of new ones. However, after testing a few days later, it was determined that he has myotonic epilepsy with tonic and absence seizures. We have been learning all we can about this. Caden is afraid that he will not be able to do the things he wants to do and that everyone will treat him differently. So lots of teaching and reassurance with him. If you would say a prayer for him, it would be appreciated. Thank you.
I haven't heard of this type, but we had a couple of children on my bus with seizures. One child had several on the bus, but thank goodness didn't last long.
So scary for him and y'all.