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Another update: Had my complete hysterectomy Friday--came home Sat but could have spent another night there. Saw Onco/Gyn surgeon yesterday and confirmed Stage II Aggressive Endometri??Endometrium Cancer with tumor growing into cervix. Tumor the size of a baseball. I can't understand why any of all the other scans I've had did not pick this up right off the bat. Anyway moving on--I am missing some kind of genetic repair gene and having genetic counseling the 25th. Aug 3rd I will have a port for blood work and chemo inserted, Aug 10 will see Dr. again and start my first rount of chemo--an all day thing. I forgot how many of those I need, then a rest before Radiation and possibly ImmunTherapy. It sure has been a roller coaster. Karen, you sure know what I mean. Love to you all.
Comments (18)
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by
grammaheh1
14 Jul 2023
+9✽
Hope your cancer treatment goes well and you feel better soon.
1 comment
They tell me they have nausea meds to put in IV with chemo drug. Back in 1991 they did not or at least I didn't get it---maybe someone with the long long hours of drip did. That was a long time ago. I will be checked for Walker's Syndrome----a genetic thing whereby a missing DNA repair gene and hereditary things are more prominent. My daughter had bilaterial mastectomy this yr. and son had precanerous polyps on his colonoscopy just recently. You and me both hope for a great treatment and feelings of good. I want to sew not mope.
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asterixsew
14 Jul 2023
+8✽
Good Luck with the treatment which sounds as if it will start soon
1 comment
Yes, they are starting everything and on the ball with this. Thank you.
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by
dailylaundry
15 Jul 2023
+7✽
It does make one wonder why they couldn't see a tumor the size of a baseball! You are in my prayers - please keep us updated and keep positive! Loads and loads of hugs, Laura
1 comment
I will say in January a 'polyp was removed but think that surgeon only removed a small thin layer of endometrium and pathology said no cancer. BUT, I am not sure she got my 5 calls to her office to report the bleeding and pain. Then from seeing a GYN the tumor was 2.? cm and in one month grew to 6.4 cm so aggressive for sure and cellular spread. Dr. said I did right to keep insisting on seeing someone. It kills me to think other people could be dying because of this other group I 1st saw.
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by
graceandham
15 Jul 2023
+6✽
You're on the way back to wholeness. So glad you are getting a port so your skin doesn't get tired of all that needle poking. Know always that you are in my prayers for good medical teams and care, and the best possible outcome with the least discomfort and strength and courage. You'll be busy, I'll be busy. Big hugs.
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I believe I got a good medical team. My first experience--not so much [in January] I'm not even sure that Dr. rec'd my [5] messages to that office. Giving the Dr. a benefit of the doubt. I think because of my experiences of that and my recent diagnosis this Dr. I have now is really staying on top of things and spending the time and talking to me explaining and really listening to me also.
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We all will be praying 4 u my Pea Farmer .You are in God's Hands xxx
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Oh Carolyn, yes we are. I love the Lord and it is wonderful to know so many are on this site that does too. Prayer means the world to me.
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by
loriziegler
15 Jul 2023
+6✽
I am sorry that you have gone and are still going through so much! I am sending prayers and love from PA!
1 comment
Ah, from PA to KY----thank you!
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I am so sorry to lear of your predicament. With the grace of God, you will be healed.Praying for you.
1 comment
Thank you.
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by
dragonflyer
15 Jul 2023
+6✽
Sending love and light...stay strong!
1 comment
Kim---love ya girl----what a ride we've been on, right?
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Keeping you in my prayers daily. Hugs. Nan
1 comment
Thank you Nan, prayers are important to me and the best gift.
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Prayers are coming your way. .Yes it is a rollercoaster. A ride no one wants to ride. Sorry you have to go through all this. I know how it is. Been there done that too. Suzanne
1 comment
I'm glad for all the prayer coming in as a few times I am having a little distress over this again and the severity. You know all too well, how all this goes and the ups and downs. I am trying to stay positive, especially for family--my poor son is so worried. My daughter is more thinking of her own situation, which is right. She, too, has gone thru bad this year. She is fighting for her survivor-ship also. My son is the worrier and he is there for me more in case my husband is sick. At least he can work from the chemo room if he has to take me. Plus he offers---he's so sweet.
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Oh dear! This is not the news I was hoping to hear. My heart goes out to you. I know it feels like you are in a whirlwind right now but hang in there. Just concentrate on what is happening now. Don't try to swallow all the info in one gulp. Chemo will be a long day, so do bring a project to work on or a book to read. On the positive side, you will be meeting a whole lot of incredible people, both patients and medical staff. You know that we will be praying up a storm for you, so don't hesitate to let us know when you need prayer. And HOPE is the word to keep in your heart. I do understand how you are feeling. And know that we are both walking this together. you are not alone.
1 comment
The Cancer Institute where I have everything done at has a 125 ste of private rooms so I will have one to myself and husband or at least one other if my husband is sick. I am told they have all kinds of things like munchies and fluids but bring anything from home like my own blanket for cuddling, or something to do if I am not sleeping. Nurses all around for helping with anything that arises. Some 'bee stinging sensations' have started in a couple places, I am questioning blood cloth now??? I will see how today goes. I am gathering info for my upcoming genetics counseling.
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by
graceandham
16 Jul 2023
+3✽
Are you remembering to rest?
1 comment
Yes, I am resting but I also have to keep moving--trying to keep blood clots away. I take frequent walks around the house and gardens.
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I am praying that God take it out by the root. That your greater will be better than your now. JESUS HEAR THE CRIES OF THE RIGHTEOUS AND COME THROUGH AS I KNOW YOU TO BE A HEALER!!! I ask that you heal the husband so that he can be strengthen on every side. Lord and don't forget her son and other loved ones. I ask that you grant unto them whatever they stand in need of. Lord give them PEACE in the midst of this test. In the matchless name of Jesus I count it done!!!! YOU NEVER LOST A PATIENT!!!! AMEN!!!
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Thanks Patti for this update and like Karen, it's not what I was expecting to hear. My prayers for you, your husband, son and daughter to give them the strength to be there for you. It's such a surprise to hear that you have cancer and then have to face the treatments that the doctors prescribe. There are so many on here who have or are going through some tough times and please count on my prayers and thoughts for a great outcome. Just have lots of rest and let others do for you. I found this very helpful, although I'm not one to ask for help - it's gratefully received. Love Chris
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by
dlonnahawkins
18 Jul 2023
0✽
Patti - it is not what any of us like to hear, but so glad that you have someone to help you now. Like Chris said, there are so many on the site going through tough times. Whether it is their own heath, or those loved ones. Prayers continue for you.