Community / Personal /
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by toogie 04 Apr 2012 ( edited Apr 09'12 16:30 )
+30

Have any of you Cuties, ever taken the drug Reclast? I recently had a bone density scan and was told I had severe Osteoporosis. I also have osteoarthritis and I knew my back was getting worse. It used to be when I mopped my house, I would be down in my back for a few days. Now, I can just get up in the morning and may be down. When I asked the rhuemotologist, if there was anything I should or shouldn't be doing, she said I could sneeze and something could break! When I told her I care for my special needs grandchild, after school, she said someone else will have to do that. What I have read on the internet about the side affects, scares me, but my sister took it 3 years ago and no side affects. She said she is due to retake it,just hasn't yet, but she also has reseverations and she is a nurse. I have recently had 2 different allergic reactions to 2 different drugs, so I don't know how I will react to this Reclast.It is given by an IV. I also know when my mom broke her leg bone (the one runs from hip to knee) by just turning over in the bed, she died from a blood clot when they did her surgery! I am scared to start breaking bones so I want to take the drug, but I am scared of the drug. Do you understand what I mean? Please pray I make the right decision, my appointment to take it is April 26, if my calcium level is up.

Comments (17)
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by justonlyme 04 Apr 2012
+12
I have not taken Reclast but have the same reservations as you expressed in your message. I had a pelvic fracture just from spinning on my heal and stopping too fast. And I keep breaking my vertebrae; this last time, it was when I was startled and jumped. My mom broke her fingers by rolling over in bed on her hand, so I know how you are feeling. Maybe the doctor could try a skin test with Reclast by injecting a small amount under your skin on your forearm and seeing if you have any reaction. I have some deathly hideous drug allergies, so I'm afraid to take anything; especially something that stays in your system a whole year!! I wish you the very best. I hope that the doctor works with you to determine the best course of action. Hang in there. And if you feel as though your doctor isn't working with you, get a second opinion!!!
1 comment
by toogie 05 Apr 2012
I think I have a good Dr. She gave me lots info about it. I too have had reactions to some drugs, that is why a concern about this. But on the other hand, broken bones are hard to deal with, espially if they are already brittle.
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by lidiad 04 Apr 2012
+9
I'm sorry to hear about your problem. I am unable to help you, just sending love and hugs to you. Lidia
1 comment
by toogie 05 Apr 2012
Bless you,Lidia-Toogie
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by sewbadly 04 Apr 2012
+8
If your concern is about side effects of Reclast, have you thought about the pill forms of bisphosphanates? The IV, once given can not be stopped... it remains in your body.
I am not a big fan of this class of drugs, as I experienced the side effect of jaw death.
Good luck in your decision and treatment.
1 comment
by toogie 05 Apr 2012
I sent you a PM
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by cfidl 04 Apr 2012
+8
If you have a natural - or homeopathic they can do kinesiology to help make a decision, I like the ides of sewbadly. take the pill first. these extended release pills are almost as powerful as the shot. So take the regular to start with. God Bless! christine Live Laugh Download Stitch!
3 comments
by toogie 05 Apr 2012
The shot is once a year, and attaches to the bone right away. The pill is daily, so it will take longer for an improvement, with me.
by marjialexa 05 Apr 2012
Kinesiology is something done by my chiropractor, and has been amazing in deciding which prescriptions I should take and which not. It's simple muscle strength testing, not invasive or complicated at all. Your body actually tells you what it needs and what will hurt it. M
by marjialexa 05 Apr 2012
what will hurt it. I think regular MD's pooh pooh it because it's too easy, simple & they can't bill $1000 for it. Please check it out. M
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by aleene 04 Apr 2012
+8
I don't know about reclast, but I have been taking Boniva for 17 years and it has helped me a lot. the benefit for me is worth the side effects.
2 comments
by toogie 05 Apr 2012
Is the Boniva building up your bone densesity?
by aleene 05 Apr 2012
Yes, it has done a good job I started to taking it because of bone cancer.
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by shirlener88 04 Apr 2012
+6
Toogie, I will be praying for you dear one. It is so hard to make a decision - you pray about it and then listen to God - He will give you an answer.
1 comment
by toogie 05 Apr 2012
Thank you Shirleen. I am asking Him to help me decide the right thing to do.
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by momhome 04 Apr 2012
+5
I agree with justonlyme- if you have more questions and you don't feel like you are getting the answers from your doctor -- go get a second opinion.
1 comment
by toogie 05 Apr 2012
It is not that I'm not getting info from the Dr, she sent me home with pages of info.It is just I am uncertain, because of the risk, if it works=Fine, if it causes other problems=too late.
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by devon 05 Apr 2012
+4
Hope everything turns out okay. My dad broke his femur bone too. He was putting his shoes on. Let us know how it works!! Hugs DeVon
1 comment
by toogie 05 Apr 2012
That is why I DO want to take it,so my back or other bones, don't start breaking, but I am so SCARED. My husband is retired, but has disc messed up in his back and he has been lifting Avery for me.
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by capoodle 05 Apr 2012
+3
I found this link and read up on it and would ask the doctor if you got any of the side effects how long do they usually last. Make a list of all your concerns and ask. It seems this is a long lasting injection if it is the perfect solution to helping your bone density I sure don't know but the doctor probably would not have given you the option to try if it isn't.
1 comment
by toogie 05 Apr 2012
Thank you for this link, I"ve read pretty much the same on other sites. I think that my bone densisty scan was so bad that the dr thought this may work faster for me, than the pills. Thank you for the encouragement
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by jrob 05 Apr 2012
+2
I will pray that you will get a VERY clear answer. Of course you are scared. Ask around everyone that you come in contact with and see if anyone has any experience with this drug. Also talk to your doctor about diet and weight bearing exercise which are proved to increase bone density. Please let us know.
3 comments
by toogie 05 Apr 2012
Thank you for praying, and yes I need a VERY clear answer from HIM. My sister took it 3 yrs ago, but I didn't know of anyone else, that is why I ask you girls/Cuties.I used to walk on my treadmill, so I volunteered to start again and also to diet.I know I am overweight, not obese, but do need to lose some weight, any good weight loss reciepes?
by jrob 09 Apr 2012
Toogie, I wasn't suggesting that YOU diet. I meant ask your doctor about foods that would increase your bone density. Sorry for the misunderstanding. hugs!
by toogie 09 Apr 2012
Oh, I am not offended. I really do need to lose some weight and it will be easier on my joints b/c of the osteoarthritis, that I also have.I am not obese, mind you, but am overweight and I know that.
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by saintpati 05 Apr 2012
+4
I was diagnosed with this too and my Dr. gave me a list of the meds available without recommending any one of them. She said take your pic. I told her I'd have to research them and when I did I decided I didn't want to take any of them - the side effects are terrible. I called my SIL, who for many yrs worked in a health food shop and has always taken supplements. She told me not to take any of them. She said women come in her store with terrible regrets and bone pain worse than the osteo. She told me to take a product called Strontium. Said many women come in to buy it and say it is better than the meds for osteo so it must help. My SIL takes it and she brought me a bottle of it. It is made by Nature's Life 680 mg (2 tabs a day - 680mg ea), Strontium Citrate. I guess some people can take the osteo prescriptions but I'm just not willing to take the risk and be one of those that has all the bad side effects so thought I would share this info with you to maybe research. She also told me to keep taking calcium w/D.
5 comments
by toogie 05 Apr 2012
Can you tell me if your bone densisity has improved? I have a friend, whose husband is taking natural herbs and maybe supplements, for a cancer that he has. His checkups have been good, so far,and it has been a while that he is on them.I don't recommend anything to anyone about this, tho. It was his choice.His whole family has had cancer,done the regular treatments and all have died, so like I said this was his choice.-I did ask them about me maybe doing herb/supplements, but like me ,they said it would have to be my choice. I really am leaning against the Reclast, espcially after veiwing photos of jaw death. I have enough problems, and don't want to gamble with my health.
by toogie 05 Apr 2012
this alternative treatment to anyone.Most of his family have had cancer ,they took reg treatment, and died.This was his choice.I did ask them if they thought herb
by toogie 05 Apr 2012
/supplements could help me.Again, like I said here, they said it would have to be a personal choice. I really am afraid of these meds, especially after seeing photos of jaw death
by toogie 05 Apr 2012
by meds,I mean Reclast and meds like them.Thank you for this info about Strontium Citrate, I will research it, but tell me if your scan improved.
by marjialexa 05 Apr 2012
I would try alternative treatment first, it's far less dangerous.
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by marron1 05 Apr 2012
+4
my husband has osteogenesis imperfecta and severe osteoporosis he just had aclasta given by iv he had quite a few side efects like swelling joints lack of energy aches pains and couldent really get out of bed for a couple of days, we thought we had made the wrong decision but now he feels ok he has to have this once a year, will he do it again next year is some thing we will have to think about. but he has lived with this condition all his life.
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by toogie 05 Apr 2012
+4
ttt for saintpati
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by airyfairy 05 Apr 2012
+4
I am absolutely the last one to ask as I never take any medicines or drugs. Perhaps I am lucky. So sorry to hear what you are going through. I am sure you will make the right decision. Many hugs Sarah.
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by marjialexa 05 Apr 2012
+2
I don't know about Reclast at all, but I seem to remember reading in a health magazine in the Dr.'s office that all the "bone-building/bone replacement" claims of maybe Boniva or one of those have been found to be exaggerated, that when enough studies were done the improvement wasn't that much of a big whoop. Take that with a grain of salt, my memory isn't what it once was. I have osteopenia, precursor to osteoporosis, and my Dr. recommended Citrical, and my stupid stomach even has problems with that! So for me, anything more drastic would be out of the question; besides not being a believer in drugs anyway. It's some of the meds I'm taking that I CAN'T do without (or die) that are actually causing the osteopenia, so I'm surely not going to bank on more meds & more side effects to fix it. My teeth are cracking like brittle glass as it is, and getting loose in my jaw, what fun. My defence is going to be water exercises at the Y, I think, maybe a little light weight lifting, walking, milk & cheese, Vitamin D & that strontium stuff. And maybe stopping the other meds and see if I really DO die. But my problem is nowhere near as bad as yours yet. My best help is to pray that God gives you a really, really clear answer about what to do, and that you can be at peace with whatever decision you make. This is really a hard one, Toogie, I don't envy your choices, truly. Just be a lot easier if we could wrap our old bones in duct tape to keep 'em together, instead of all this nonsense. Bless you, big hugs, Marji
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by bevgrift 08 Apr 2012
+1
Flower and hugs for you.
I have no knowledge to give.
Sorry to hear about your Mom that must be hard for you.
My Mom had a hip replacement 27 yrs ago and she is now 86yrs and her bones are not good for standing. She does always take calcium tablets.
How is a bone density test done?
Hugs Bev
1 comment
by toogie 09 Apr 2012
It is just a scan-You lie on the table and a small machine passes over you, not in a tunnel, I am claustraphobic(misspelled).Nothing to it
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by parkermom 09 Apr 2012
0
I don't have any knowledge or advice to share, but I hope that after you've made your decision that you post it and your progress. I am having my first bone density test today, so maybe we can compare notes!